“The IDeaS initiative: pilot study to assess the impact of rare diseases on patients and healthcare systems”
EVERSANA™ was the only data and analytic organization invited by a consortium of provider organizations and the NIH to participate in a study with the National Institutes of Health’s National Center for Advancing Translational Sciences (NCATS). The study, “The IDeaS initiative: pilot study to assess the impact of rare diseases on patients and healthcare systems,” was published in the Orphanet Journal of Rare Diseases.
The study provides new evidence of the potential impact of rare diseases on public health, including the number of individuals with rare diseases and their medical costs being on par with cancer and heart failure.
EVERSANA’s data and analytics team, including Ramaa Nathan, PhD, EVERSANA Director of Data Science, and Pierantonio Russo, MD, Chief Medical Officer with EVERSANA’s Data & Analytics team, supported the study by providing data and analysis of patient journeys and associated costs.
Dr. Russo has practiced cardiac and heart transplant surgery for over 20 years, and more recently he has been a healthcare executive with expertise in data and analytics, health economics and reimbursement, health insurance,…
Ramaa Nathan is a Director of Data Science at EVERSANA™ with several years of experience in the financial and healthcare industries. Ramaa is a data scientist and statistician with extensive programming, statistical and data…