Committed to Improving the Lives of People with Rare Diseases
The RareVoice Awards is an annual celebration to honor advocates who give rare disease patients a voice on Capitol Hill and in state government. Patient advocates, industry executives, and Congressional and government agency staff gather to honor these outstanding advocates in the rare disease community.
Proceeds from the RareVoice Awards event go toward supporting Rare Disease Legislative Advocates (RDLA). RDLA provides free resources for successful grassroots advocacy and serves as a clearinghouse of ideas that is open to all members of the rare disease community with an interest in sharing information around common causes and advocating for the introduction or enactment of legislation.
Agenda
6:00 PM – Cocktail Reception
7:30 PM – Congressional Toast
8:00 PM – Awards Ceremony
9:00 PM – After Party Celebration
For the 400 million people affected by rare disease, EVERSANA is on a mission to advance life sciences for a healthier world. Together with our clients, we aim to create better patient experiences, break down the barriers to access, and bring safe and effective therapies to patients around the world.
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